Well we have finally moved into our own place. Chandler likes being back in his crib. He is starting to get sick again. I feel so bad cause he is so miserable an i have to work when he needs me. Kaeden enjoys having his own room again. We found out that Chandler is getting another mri, they want to fix his feet an his cleft. We also found out he is only deaf in one ear which is great. We dont know how well he can see thou. He isn't real grabbing things anymore, an he trys to sit up some what but not so much anymore. He has started therapy. So hopefully we can get him out of his bed more. We have started repositioning Chandler every two hrs because he isn't doing anything an we r worried he may get sores from laying so much. His heart rate an respiratory rate has been increased lately. Hopefully we get mri soon so we know where his brain is. The doctor seems to think Chandler won't pass from his brain. That he is going to get sick an not be able to get reid of it. We are planning Chandler first birthday. It is so hard because he ia going to be a year an they keep saying he wont. I want to give him as many experiences has a can an i hope he makes it to enjoy his first birthday. We are also talking about different pain meds because his body is getting use to the morphine an i feel horrible having him on meds but if i don't he will be in constant pain. I feel good that i am doing everything to make sure he is comfortable an has a good life. But it still bothers me he cant enjoy things like other kids an he cant do things like other kids but all we can do is work with it an do our best.
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