RIH CHANDLER RICHARD SLACK

I would like everyone who is expecting or if they child as similar problems to Chandler's that they are aware of the gene FLNA that is very rarely seen. Because none should have to go through what myself an family has went through.  No child should have to go through what Chandler went through.  He fought hard every day for his life. An yes we did what we could to make him comfortable an make sure he enjoyed what he could.  It was still a horrible way to live. He knows he w as loved very much an will be missed everyday. During his last few hours.  His nurses an I did what we could for him. I held him three hours before an made sure he knew I was there for him an that it was OK. I don't wish this on my worst enemy.  Losing Chandler is the worst thing that has ever happened to me. I will forever had an empty place in my heart.

Please don't hesitate to ask questions an if you feel you are being blown off or your concerns are going unanswered than keep asking. 

RIGHT CHANDLER RICHARD SLACK!!! MOMMY LOVES YOU BABY BOY AN MISS U SO MUCH.

September 5th 2012

Well as i promised I would update everyone.

Chandler passed on sep fifth at five pm. He was very comfortable an loved. He fought hard an had a good year. We made sure he experience what he could an made sure he was involved in family outtings. Chandler passed from two infection in his lungs an one in his urine.  The antibotics weren't working anymore. 

Chandler will truly be missed an loved everyday. He was a miracle baby an he will never be forgotten.  He touched so many people an taught everyone so much. I love you my sweet baby boy!!! RIH CHANDLER RICHARD SLACK!!!!  MOMMY N DADDY N BROTHERS LOVE YOU!!!

Happy birthday chandler.

HAPPY FIRST BIRTHDAY CHANDLER RICHARD SLACK.  sorry you have to spend your first bday in a hospital on life support.  But you made it to celebrate you birthday.
Chandler was admitted to u of m hospital on August 31 2012 because he wasn't responding an he was stopping breathing an having trouble breathing.  On September 1 2012 chandler was stopping breathing every three minutes an would have to be bagged to come back. So he was put on life support.  He was also started on fentnal for pain. On September 2nd 2012 we talked to doctors an decied to stop all medication except pain an anxiety control. We also decied to pull life support.  So...christina, aunt miranda,kaeden,nana,papa,aunt steph, uncle jorge an Dante came to see him. We had a nice time with family spending time with chandler. At 11pm we pulled life support..  As of right now chandler is having trouble breathing but is doing alright on oxygen an fentnal. We are just waiting for him to get weaker an weaker. We are loving on him an making sure he is comfortable.  Well this is it for now till later.

We love you chandler Richard slack!!!