I would like everyone who is expecting or if they child as similar problems to Chandler's that they are aware of the gene FLNA that is very rarely seen. Because none should have to go through what myself an family has went through. No child should have to go through what Chandler went through. He fought hard every day for his life. An yes we did what we could to make him comfortable an make sure he enjoyed what he could. It was still a horrible way to live. He knows he w as loved very much an will be missed everyday. During his last few hours. His nurses an I did what we could for him. I held him three hours before an made sure he knew I was there for him an that it was OK. I don't wish this on my worst enemy. Losing Chandler is the worst thing that has ever happened to me. I will forever had an empty place in my heart.
Please don't hesitate to ask questions an if you feel you are being blown off or your concerns are going unanswered than keep asking.
RIGHT CHANDLER RICHARD SLACK!!! MOMMY LOVES YOU BABY BOY AN MISS U SO MUCH.
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