Chandler Richard slack

<p>Chandler was born 9/2/11. His due date was 10/2/11. He weighed 4lbs 14Oz, inches long 7:22am. &lt;br&gt;<br>
He's was an emergency csection because his heart rate keept flat lining an he wasnt moving. This went on for a month before he was born but doctors said he was fine. When he was born he wasn't breathing so he was intabated. He was sent to another hospital with a nicu. The doctor came an told me in recovery it didn't look good. He wasnt breathing, he was missing fingers on one hand, he had clubbed feet, he had a cleft plate, an his bottom jaw was too far back. During his stay at nicu they told us his brain was Moshe, he was having seizures, an he had a chromosomal disorder trisomy 18. That he wouldnt enjoy life an he wouldnt live off ventilator. They gave him 1% chance he would. On September 5th we had him baptized an took him off. He had a few bad moments but pulled.through. His oxygen an heart rate were very unstable. On September 19th he was sent home on a heart monitor, feeding machine, an sucktion machine. On September 26th he was readmitted to the picu because he was unresponsive, stopping breathing more, an his heart rate was dropping more. on September 28th he was flown to Mott childrens hospital because Saginaw didn't know what to do for him.
During his stay at Mott they did an eeg, which showed no seizures, they did an MRI which showed, over half of his brain was dead due to strokes while i was pregnant. They said they give six months to a year. we were sent home with hospice an the biggest concern was keeping him comfortable. hospice came three times a week. He started seeing all kinds of different speacility doctors. The genetics doctor found out he doesnt have any chromosomal problems but a mutated gene flna they said they never seen before so they had to do some research. Chandler started doing things he wasnt suppose to so they said they were gonna think of him as he was gonna live a full life. So we started planning surgerys.