Well here is an update on everything. Chandler is on his humidifiers pretty much all day. He is on oxygen few hours everyday. The past couple days he has sleept four hours at the most. This kid is crazy. He went to the art festival yesterday an had fun being outside. We took him for a walk friday night he loves being outside. He is still on all his meds with an antibiotics for a respiratory infection. He has been losing color the past couple days. I feel so bad he cant b outside more but he over heats so fast an he ends up having mire seizures. But i will take him out am do as much as he can handle i want him to experience as much as possible. Right now we are waiting on a house to open an we are staying at a motel. Chandler is doing good. He is liking the air condition i think. Well thats all for now.
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