June 29th

Well i haven't updated in a little while so here we go.
Chandler is doing alright he has started spitting up every feeding again so we have to move his feeding down again probably for another couple months. It seems like he does good at six an half for a week maybe two an than his body cant handle it. He is still on all medication. He is still having seizures. He seems to be coming more an more restless. He isnt sleeping very good either. On a good note he is getting more alert an he is getting stronger. He is Sitting in a bumbo an lifting his head an he is bending at his ribs anymore. Therapy is suppose to be starting soon so hopefully that will help. Hospice is still coming , hopefully he hits the one year mark an we can talk about discharge. Its still all hard but day by day. He is a mommas boy. He also had his first library trip today,We checked out the rainbow fish, very hungry caterpillar, an penguin.Chandler liked the rainbow fish book his head just keept going back an forth, an him an kaeden went to lego party. Him an kaeden also visited with great grandparents on jimmys side. He also had his first wagon ride an fell asleep. As for kaeden i haven't heard anything about his results yet. An we are still staying in a motel it sucks i am paying so much to stay it ots ridiculous. There are no good apartments. I am handle everything best i can. Kaeden is acting up being here cause i can't takr him outside alot an its so hard trying to juggle everything.But day by day it will get better. They say god doesn't give ya more than ya can handle a he gave me chandler an all these obstacle cause he knew i could do it.